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About Us

Who we are

The Cystic Fibrosis Association of Erie County began its journey on May 3, 1965, when and Lucille and T. Paul Sullivan had a child with Cystic Fibrosis who passed away at the age of 10. The Sullivan's hoped to bring public attention to this disease, realizing that early diagnosis and treatment could help keep children alive while waiting for a cure. 

Today, the CFA continues this journey as a team of unpaid volunteers who proudly carry-on the Sullivan legacy. The CFA helps better the lives of individuals with CF and their families to alleviate some of the financial burdens, stress, and anxiety that come with the challenges associated with CF. 

The CFA currently supports approximately 40 families struggling with this life-shortening, inherited disorder for which there is no cure.

There is a great need for this Association since the federal government did not, and to this day does not research for treatment or cure of this devastating disease.