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About Us

Who we are.

The CFA began its journey on May 3, 1965, when Lucille S. and T. Paul Sullivan had a child with Cystic Fibrosis who passed away at the age 10. The Sullivan’s hoped to bring public attention to this disease, realizing that early diagnosis and treatment could help keep children alive until a cure was found. 

We continue this journey as a team of unpaid volunteers who proudly strengthen the Sullivan's legacy. All these years later and we are still working towards a cure. We are dedicated to helping better the lives of individuals with CF and their families. Our goal is to help alleviate some of the financial burdens, stress and anxiety that come with the challenges of CF. 

We currently support approximately 40 families struggling with this life-shortening, inherited disorder for which there is no cure.

There is a great need for our Organization since the federal government, to this day, does not research for a cure of this devastating disease.